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Cystic Fibrosis Trust

Campaigning in your region

Take a look at how we're campaigning for access to precision medicines in England, Northern Ireland, Scotland and Wales, and find out how you can share your voice.

After a tireless campaign by the Cystic Fibrosis Trust and the CF community, England, Wales, Scotland and Northern Ireland now have access to all currently-licensed CF precision medicines: KalydecoOrkambi and Symkevi.

We are now focussing our efforts on the latest Vertex precision medicine, the triple combination therapy (known as Trikafta in the United States). Find out where the drug is at in the licensing process, who it could stand to benefit and what we are doing to support the process.

Latest news

On 30 January 2020, the UK Cystic Fibrosis Medical Association wrote a letter to Matt Hancock, Secretary of State for Health and Social Care, regarding the availability of new treatments for cystic fibrosis in the UK. You can read this letter here.

Read the letter

For the latest news on our Stopping the Clock campaign and other updates in the CF community, sign up to receive our e-newsletter.

Research we fund

We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.

What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are around 10,500 people living with it in the UK.

Contact us

Get in touch with us to speak to someone on our Helpline, found out about an event or speak to our Press Team.