The panel will take questions and provide updates on areas such as research, CF care and campaigning for access to medicines, and it’s a great opportunity to meet other parents and carers in your area.
Earlier this year, we hit the road and held a series of community information evenings in Newcastle, Nottingham, Birmingham and Cardiff. We’re planning on visiting other areas of the country later this year for some more events. Check back here in the next month or so for more details.
We regret that due to the risk of cross-infection, people with CF are unable to attend. We are aiming to stream as many of these events as possible via Facebook Live.
Do you have a question or topic you’d like raised, or suggestions for where we should hold future events? Let us know by emailing firstname.lastname@example.org. After registering, you will be able to ask specific questions and nominate topics to be discussed on your chosen evening
Why come along?
- Get the latest news on CF and the fight for a Life Unlimited – and hear how you can help
- Put faces to the names and meet some of the Trust’s dedicated staff.
- See where your support is going
- Meet other families living with CF in your area
Don’t believe us – here’s what audiences have said:
“A very useful update and good that it was open for discussion”
“Good to hear of all the research priorities going on as well as day to day care”
“Much easier to attend a local event, thank you for the time given by local consultants too”