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Watch the presentations from the UK Cystic Fibrosis Conference.
In this section
18 September 2018
David Ramsden, Chief Executive, welcomes delegates to the 2018 UK Cystic Fibrosis Conference.
Dr Janet Allen sets the scene for day one of the conference.
Oli Rayner, Special Advisor for Research and Patient Involvement at the Cystic Fibrosis Trust talks about the latest developments in the therapeutic pipeline for CF.
Dr Damian Downey, Clinical Senior Lecturer at Queens University Belfast, discusses the latest information on various transformational treatments in development, triple terminology and a likely timeframe.
Dr Ruth Keogh, Associate Professor of Medical Statistics at the London School of Hygiene and Tropical Medicine, discusses personalised information on survival and forecasting future population trends, understanding the long-term impact of Ivacaftor and learning about the transplant pathway in the UK.
Dr Mandy Bryon, Consultant Clinical Psychologist at Great Ormond Street Hospital, discusses putting the person into personalised medicine.
Professor Stuart Elborn, Professor of Respiratory Medicine at Imperial College London & Royal Brompton Hospital, discusses the current model of care, external pressures, the rising number of adults with CF, changing expectations of parents and people with CF and novel solutions.
Professor Rob Horne, Professor of Behavioural Medicine and Director at the Centre for Behavioural Medicine at UCL School of Pharmacy, asks whether personalised medicine achievable, and discusses the impact on the individual and clinical teams.
Professor Jane Davies from Imperial College London discusses the pulmonary complications of CF.
Professor Barry Plant, Consultant Respiratory Physician and Director of the Adult CF centre at Cork University Hospital and Clinical Senior Lecturer at University College, discusses large EU-funded collaboration across Europe to understand pulmonary infection for CF, microbiome analysis and nsights into pulmonary infections following long term ivacaftor therapy.
Dr Charles Haworth, Director at the Cambridge Centre for Lung Infection, discusses cross-infection, challenges of Mycobacterium abscessus and novel hospital design.
Professor Steve Hart, Professor in Molecular Genetics at the UCL Institute of Child Health, discusses regenerative medicine.
Professor James Shaw, Professor of Regenerative Medicine for Diabetes and Honorary Consultant Physician at Newcastle University, discusses the significance of CF-related diabetes, whether loss of pancreatic islets is secondary to pancreatic damage and whether islets can regenerate.
Patrick Harrison, Senior Lecturer at the Department of Physiology at University College Cork, Ireland, discusses the long-term goal to find the pathway to a CF ‘cure’ harnessing gene editing to deliver over the next 10 years, small molecule treatments, and what are the bottle necks to therapies.
Richard Hunt CBE, Chair of Trustees at the Cystic Fibrosis Trust, introduces day two of the UK Cystic Fibrosis Conference.
David Ramsden, Chief Executive of the Cystic Fibrosis Trust, presents how the Cystic Fibrosis Trust's three-year strategy is responding to the needs and demands of the CF community.
Professor Jane Davies of Imperial College London discusses pathways to new medicines and explores and explains the current drugs pipeline and the upcoming challenges. Following, is a panel discussion on the value of new medicines.
Dr Keith Brownlee, Director of Policy, Programmes & Support at the Cystic Fibrosis Trust, discusses the future of CF care, followed by a panel discussion.
Interactive presentation/live podcast by Will Marler covering different experiences of day-to-day life with CF and the range of information and support issues faced by people with cystic fibrosis.
Closing comments from Richard Hunt CBE, Chair of Trustees at the Cystic Fibrosis Trust.
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Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are around 10,500 people living with it in the UK.
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