Your donation will make a difference:
Cystic Fibrosis Trust
Forum

Cystic fibrosis financial support

Cystic fibrosis can bring its own financial burden, so we provide a range of grants for people with cystic fibrosis and their families that struggle to meet these costs.


Through our welfare and rights advice service, we can offer expert and personalised information and advice on benefits issues, including benefits checks and support through the benefits process. 

What do you need help with?

We also provide a range of welfare grants to help in times of financial need:

Emergency grants

Small grants of up to £150 to help in times of immediate financial need.

Transplant grants

Grants of £250 to help with the costs associated with attending a transplant assessment and having a transplant.

Health & Wellbeing grants

Grants of up to £350 to fund goods or services that will improve the health and wellbeing of someone with cystic fibrosis (e.g., white goods, gym membership, exercise equipment).

Holiday & Break grants

Grants of up to £300 to fund holidays, breaks, trips or days out for adults with cystic fibrosis who wouldn’t otherwise be able to afford a break.

Home Care grants

One-off emergency grants of up to £500 for times of acute illness or personal crisis, designed to support people with cystic fibrosis to be cared for comfortably at home.

Prescription Pre-Payment Certificate grants

One-off grants to fund the cost of a pre-payment certificate for prescriptions.

Funeral grants

Grants of £750 to help towards funeral costs when someone with cystic fibrosis dies.

Transplant grants

What is the Transplant Grant and what can I use it for?

Transplant are grants of up to £250 to cover the costs of travel or accommodation that people with cystic fibrosis and their families can incur when being assessed for a transplant or when having a transplant.

How much can I apply for?

The grants are for a maximum of £250. You can apply up to two months after your assessment/transplant. 

When can I apply?

Every person with cystic fibrosis can apply for two transplant grants - one to cover costs associated with transplant assessment and one to cover costs associated with a transplant.

How do I apply?

Please complete the application form and send it in to us by email or post to the address on the form. The application will need to be endorsed by a member of your cystic fibrosis/transplant team.

If you need any help applying for this grant, please contact our helpline.

For more information please read our grant guidelines.

Funeral grants

When someone with cystic fibrosis dies, we can provide a grant of £750 to help with funeral costs. Grants are usually processed within 14 days of us receiving a completed application, and we can pay the grant to funeral directors directly if it is more convenient.

How do I apply?

We aim to make it as easy as possible for bereaved families to apply for this grant at such a difficult time.

Please complete the application form and send it in to us by email or post to the address on the form. The application will need to be supported by a professional who was involved in the medical care of the person who has died – if this is difficult for you to arrange please contact us and we will help.

If you need any help applying for this grant, please contact our helpline.

For more information please read our grant guidelines.

We provide information to support those coping with a bereavement.

Education grants

These grants are administered on behalf of the Cystic Fibrosis Trust by the Joseph Levy Foundation.

The Joseph Levy Education Fund helps adults with cystic fibrosis over the age of 18 with the costs of higher education or other professional qualifications including vocational training. The Fund also accepts applications from people with cystic fibrosis aged 16 or 17 who are not moving into formal further education and who wish instead to undertake vocational training.

For further information please contact Maria Zava by email or on 020 7616 1207.


Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

Get in touch